PhD in Being Me

Tag: disability

  • Being nourished by my own voice

    An art collage I made early in the new year

    It’s been several months since I have written on my blog.  I’ve been having a tough time and have needed (and continue to need) deep quiet time.

    Just this week, I remembered how nourishing it is for me to read my own words.  I was feeling the nudge to write again, which I haven’t felt for some time.

    Writing gives me a chance to spend time with myself, open up wellsprings of thoughts and feelings, and feel myself healing as I let the words flow from and through me.

    I sometimes start writing with a topic in mind and other times, I can feel some pressure or tension that is seeking liberation, and writing often soothes those feelings.

    Over the last 10 years, I’ve been learning about loving myself and being compassionate with myself.  It’s been incredibly rewarding to make changes in my life towards greater self-love and self-compassion.  Recently though, I discovered how hard I was still being on myself and how judgemental I was being. 

    I have struggled with my physical and mental health for most of my life.  I would describe myself as being at rock bottom this year.  And yet, it’s taken being here, at the bottom, to truly see how deep-rooted my self-judgement has been. 

    I have been doing a lot of work in therapy, including art therapy, and its really teaching me how to become an even safer space for myself.  To acknowledge what I have survived, what I learned as a result, and to have compassion for the scars and the pain I have. 

    Late last week, I started feeling like a failure because I haven’t “cured” myself of my debilitating chronic fatigue syndrome.  I’ve had this thought over and over for years.  Through what I learned in art therapy, I finally saw how judgemental that was of me and I chose to give myself more compassion instead.  It’s been a nice change.

    I know there is a long road ahead for me that requires patience, compassion, rest, love and time.  I am finally starting to feel worthy of giving myself all of that and knowing that my life matters even through this time of rock bottom.

    And so I write.  I create art.  I breathe.  I cry.  I rest.  I hear the whispers of my heart and the forest as they guide me.  I complete my disability paperwork and feel all the tough feelings.  I laugh.  I garden.  I sit.  I mourn.  I decompose and wait to see what grows. 

    Thanks for reading ♥️.

    Bright pink lillies

    ©️ Bradlee Zrudlo, 2025.  All Rights Reserved.

  • Delicate

    A bird sitting on a branch during a snowstorm

    Feeling like I am on thin ice

    Unsure which move I can safely make

    Will the decision I make leave me drained, emotionally and physically

    Or will it fill up my heart’s cup enough to offset the fatigue that will surely come?

    This delicate balancing act of trying to conserve my limited energy while still making sure I feel good with the life I am living despite my disability

    Is tiring

    It’s delicate

    It’s wearing me down

    Now that I have stopped and given myself permission to be exactly where I am, the true depth, delicacy and precariousness of my health is more evident

    I keep going because to stop would be worse.  Completing chores, walking, doing mild exercises, running errands, talking to friends, family and neighbors, crafting, reading.  Those are all things I use my energy for.  It makes me so sad that sometimes just going for a walk is too much, or that spending time with friends makes me feel so good, but then I feel so much worse the next day.

    Like I said, it’s delicate. 

    I have been learning that there is true power in being vulnerable and owning my life from the inside out, even if I’d rather not have chronic fatigue syndrome.  And so I write and I share and I hope that my words help you feel seen and validated.

    No matter what you are balancing, and how delicate it is, you are worthy of being seen, acknowledged, appreciated and respected, exactly as you are.  With every breath we take, may we anchor blessings for a more inclusive, accepting and respectful world.

    With hugs, Bradlee 

    © Bradlee Zrudlo 2025. All Rights Reserved.

  • Changing Expectations

    Wood art with the words, "you are special, loved, adored."

    Well, it’s nearly the end of 2024, and I have  deep thoughts to share as the year comes to a close.

    I grew up at a time where success in life looked a certain way, and I recently realized how much I was holding myself to those societal expectations.

    As a person with a disability, I have been blaming and shaming myself for not being able to get over my chronic fatigue syndrome and for not being able to heal it no matter how hard I have tried. 

    It’s only after resting a lot these past few months that I can truly feel the depth of the fatigue I have with this condition. It’s as much a part of my whole being as any other part of me.  I honestly thought I was less of a person because of this condition, and that couldn’t be further from the truth.

    I have written posts in the past about how chronic fatigue has taught me to be more accepting and compassionate with myself.  And that is completely true, but I have reached a new depth of acceptance these last few weeks. 

    I feel like I can stop fighting now.  I can stop trying to be perfect, I can stop pretending that I can keep going while my health fails, and I can just stop, breathe, and be me, exactly as I am.

    It is a relief to stop fighting and I am hoping that I will continue to relax into this new state of being.  I can only imagine how healing that will be for me ❤️.

    During my reflections, I have realized that every life has value, no matter how the person living it experiences it.  Each way that we are different from each other is important and valid. 

    No more trying to fit humanity into tiny boxes, but instead, learning from each other and honouring the uniqueness of our individual experiences

    That is the new way that my heart is seeing the true measure of success in life.  Am I able to honour where I am at, with kindness and compassion?  And can I treat all people that way?  Wow, that would be a powerful way to live.

    And so, as we transition to 2025, I honour you, dearest reader.  Thank you for taking the time out of your precious life to read my reflections on getting a PhD in Being Me.

    Lastly, I created the piece of art above to remind myself that I am special, loved, and adored.  May you fill up with the message, too, and may you know just how precious and lovely you are, no matter the circumstances of your life.

    Big hugs, Bradlee ♥️

    © Bradlee Zrudlo 2022-2024. All Rights Reserved.

  • Snails are slow, and sometimes, so am I

    A close up image of a snail, with its two antenna extended and its shell in the background.
    Snails are so cute, they make me smile

    I love snails. I often pick them up off the road and place them on the plants on the side of the road. I love watching how slowly and deliberately they move along a plant or the ground. They bring their homes wherever they go, and they seem to enjoy taking their time to get where they are going.

    When I walk the dogs and I come across a group of snails, I always want to stop and just watch them. For such little, slow-moving creatures, they have such an ability to inspire and bring joy. They remind me that even though I move slowly with chronic fatigue sometimes, I can still inspire and bring joy.

    A snail’s life is no less important than a fast cheetah’s, so it makes me wonder why I have put so much pressure on myself to get better and be faster than I am now. I have learned so much from having chronic fatigue syndrome. I am now more effective, efficient, and productive, and I excel at resting and paying attention to my precious body’s cues. Because I have limited energy, I use what I have wisely and only on tasks that matter to me and have high value.

    I love how the cute little snails on my road gave me such an opportunity to validate and appreciate myself, even on days where I move slower than a snail.

    No matter what pace you can go in your daily life, or how far you go, may you know that your life and you matter and are perfectly valid. Big hugs and thanks for reading.

    A snail with a striped shell on a yellow flower
    You matter, no matter how fast or slowly you move through life

  • Cultivating strength through weakness and hardship

    Image of Bradlee flexing her right arm and smiling.
    Image of me flexing my muscles in celebration of finding strength within me

    Sneak peek: loving video at the end of this post!

    Since I started getting progressively more tired with chronic fatigue syndrome, I thought I was getting weaker.  It can be easy to associate any condition or change in abilities with weakness.  I felt the same about how anxious I was getting over the years.  It turns out I was wrong.  Learning to cope with challenges and unexpected realities creates strength and resilience, not weakness.

    For a long time, I hid how tired I was, and I didn’t talk about how hard it was, even with my doctor and naturopath. I felt this absurd need to downplay my symptoms. Through many hardships in my personal and professional, I learned just how much shame I was experiencing. I think I needed to soak in that shame so I could find my self-worth and rise up despite my diagnosis. I feel like I could write a book about this subject and I really hope to in the future. There is something so magical about struggling and suffering yet finding one’s way through. It is so beautiful and inspiring, and I hope to uplift and support others by sharing deeply about my struggles to embrace, accept, know, and love myself.

    I had so many loving and supportive people who validated me, even when I didn’t think I was good enough. My family first helped me see that I am physically and emotionally strong even though I am always tired.  They supported me through the shame and unworthiness I felt about it. My beautiful friend Jana helped me with that, too, when I easily moved a heavy umbrella stand. And Georgette coached me through the fears I had about taking big steps to reclaim my power. K taught me that there are cycles in life and that it’s okay not to give 100% all the time. I remember how incredibly powerful their help and support was. I am so grateful to all my friends, family, and colleagues who loved and appreciated me for me, regardless of how tired or anxious I was (or am).  I hadn’t recognized how small, not good enough and incapable I felt just because I am chronically exhausted.

    With every supportive and encouraging word from family, friends, colleagues and that I learned to give to myself, I started reclaiming my worth and my physical and emotional strength.  Learning to honor myself and my precious body has been life changing for me, too.  Developing my self-worth has helped me make healthier and more confident decisions in my life, including recognizing and enforcing boundaries, eating ways that give me more energy and other healthy habits.  Tremendous good has come out of having chronic fatigue syndrome.  Through perceiving myself as weak, I have found true strength, what a beautiful gift.  My strength still wavers at times, but now that I have found it, I won’t lose it again.

    Even though we face challenges in life, whether they are imposed on us by society or not, whether they are temporary or permanent, physical, mental, emotional, or financial, or the result of longstanding systemic racism and oppression, we are still strong.  Challenges of any kind don’t make us weak.  If anything, they make us more resilient. 

    May we all rise up and reclaim our inner power and strength and dissolve all barriers so we may have true equity, unity, harmony and acceptance within our hearts, bodies, minds, societies, cultures and countries. May we all be blessed to have loving and supportive people to share our lives with too!

    In closing, I am sharing a video with a special message and some deep breaths from my heart to yours ❤️.

    A short video to anchor the message of finding strength, self-love and self-worth especially through challenges

    Note: I have not suffered the effects of systemic racism and oppression as a white, cisgender woman of Lebanese and Italian ancestry.  I wanted to include reference to those who deal with that on a daily basis to honor their strength and resilience. And to highlight my commitment as an ally who is learning and applying what I learn each day. May those oppressive and racist systems be completely transformed and resolved for the well-being of all humanity.

  • When rest is best

    An unmade bed that is ready to climb into for rest
    A bed ready to rest in!

    Living with chronic fatigue syndrome can be quite confusing and hard. I remember being a student athlete, working full time and working on a Master’s degree in another city, and other wonderful examples of having energy. I also know that having this medical condition has taught me so much about myself and has given me a chance to know myself better and to heal some big wounds.

    I can only write about my experience of chronic fatigue syndrome, and my experiences will likely be different from those of others. I acknowledge, honor, and respect everyone with a chronic condition, no matter how their symptoms manifest.

    The thing I struggle with the most is not comparing myself to others who aren’t constantly tired. I look at the volunteers in my community and how hard they work, and I am in awe and jealous all at once. Chronic fatigue syndrome has taught me to focus on my own experience of life more. To notice how it feels to live the life I have, even when I sometimes want it to be different.

    I don’t have control over if I get better (believe me, I have tried), but I do have control over the choices I make each day. I can choose to notice that my head hurts and I am feeling nauseous. Both of those are my precious body’s way of saying, “hey, rest is what I need, not more doing.” Being respectful of myself means listening to my body, honoring any emotions I feel about needing to lie down, and giving myself permission to rest in a world that is so very busy.

    I have struggled with this a lot and am much kinder to myself now. I still whine and moan sometimes because my emotional maturity level goes down the more tired I get. Despite this, I am proud of how much easier it is for me to make choices that are in my best interests. I am proud of myself for developing boundaries and finding the courage to speak up about them. I am proud of myself for developing a stronger sense of self worth despite having this condition. I would still like to get better at not comparing my energy to others and not judging myself, but I recognize I am getting better at this. I have such a wonderful life, I don’t want to miss out on it just because I am chronically tired. May we all be blessed with knowing when rest is best and with the ability to be so kind to ourselves.

    I dedicate this post to my beautiful body for teaching me about when rest is best and to chronic fatigue syndrome for helping me polish my interior and exterior so I can shine brighter than ever before despite this condition. May we all be blessed to know how life is always here to help us, even when life isn’t how we want it to be. Big hugs!

    © Bradlee Zrudlo 2023. All Rights Reserved